Blood clots can be very serious and need to be treated quickly. I went to the ER on Easter due to shortness of breath. Help! I also have osteoporosis and psoriatic arthritis. Im worried. Whether or not pushing myself physically did any good I'll never know. Blood clots can be a lot to recover from, both physically and emotionally. We then paid for a private consultation with BUPA who said we could have an MRI scan on the back to see what was going on. But when clots break free and travel through the bloodstream, they can block blood flow to essential organs such as the lungs (causing a pulmonary embolism) … I'm on warfarin (alternating 3 and 4 mg each day) Others feeling like this? I left with an INR of 1.8. But I just wanted to say this article help me and I am very sure that many people appreciate. There are many interactions with Warfarin. Either way, those with minor embolisms may be lucky enough to return to work a week or so after discharge. Thinking that he had a slipped disc he booked in with an osteopath. When you will be encouraged to walk the unit is based on what residual heart damage is found and how your body is faring. NO ONE ever suggested to me about having my blood tested prior to my experience even though my sister had a PE after surgery as well! Recovering from pulmonary embolism will take some work, both on your doctor’s part and on yours. Never drank, took drugs or over counter meds in my life so most likely caused by anticoagulant medication. https://www.merckmanuals.com/professional/pulmonary-disorders/pulmonary-embolism-pe/pulmonary-embolism-pe?query=Pulmonary%20Embolism%20(PE). I also did not have most of the visible symptoms of DVT, just a lot of pain and a little warmth behind the knee. I lay there thinking about what to do and next thing I knew it was morning. What I didn't realize then was that my experience in the ER, and the subsequent hospital stay, were the easy parts of my diagnosis. Gasping is my term for breathing harder and faster than what ordinarily would be expected. No matter how much i breathed I felt dizzier and dizzier. I’ve been to the er several times because of chest pains and they ran lots of blood tests and did x rays, I was told everything was normal. I've been on medical leave for a while already for a condition called Pseudotumor Cerebri- fancy words for too much fluid in my head that puts pressure on everything. I assume the news from the echo heart scan that was done two months at my hospital's out-patients clinic ago was ok. It survived a potentially lethal assault. Ena Wanliss. (no insurance due to residency and hubby is retired.) This is typically a heparin type drug for 24 hours and then the addition of warfarin. healthherbalclinic. After having clots in both lungs for 6 months now, i am always tired, have headaches and and very down and lonely. She decided to override what the Pulmonologist concluded and say it was my sedentary lifestyle. That isn't too bad. Within an hour, Pete was blue lighted by ambulance to the Royal Free Hospital in London. I have also diagnosed with PE. My oxygen was at 94%. Woke up feeling like i wasnt getting enough oxygen. Initial treatment at the hospital indicated the doctors were also suspicious of a heart attack. Do I need an echo-cardiograph to see if my heart ejection factor etc has gotten worse? So, after having been on coumidin for 2 years , I'm going to stop it next week for 5 days until surgery and will resume it a day after surgery plus lovinox for 10-12 days following surgery. You don’t want to be alarmed but how can you not when your heart is racing and you have chest pain. You helped me tremendously with your thoroughness and first hand experience. While traveling, take precautions to prevent clots. Blood Clot Treatment and Recovery A Patient’s Guide Here are steps you can take to reduce the recurrence of blood clots: • Tell your HCP and other family members if there is a history of blood clots • If you have to be confined to a bed, ask your HCP about options to prevent blood clots • Get up and move if you’ve been sitting or traveling for a long time. I thought it was a lot of fuss about nothing because I was feeling fine, just a little bit breathless if I walked too far. Today I might have a pressure or a spark when I start exercising or during a good workout. It got worn out 2 weeks before my birthday?! I tried, but did not have the stamina required for my job. Anything beyond the smallest inhale hurt. He wouldn't recommend anything else right now - at least for me (I have a clotting condition). After I was off the medication for 2 weeks the blood test was done again and came out negative. After surgery 40 yrs ago had a PE. I've learnt more from you then I have the doctors, which I found myself becoming quite emotional & teary! Now my goal was simply get back home and see my Dr. I was losing my voice, the quality changed and had to have a motility study and speech therapy. Each time someone was in I had to get a temperature and blood pressure reading. Preventing clots in the deep veins in your legs (deep vein thrombosis) will help prevent pulmonary embolism. Cat scan showed bilateral PE. In many cases, multiple clots are involved in pulmonary embolism. Stay strong. This content does not have an English version. Prayers for continued health for us all! The hematologist ran tests, the one that came back positive was Lupus anticoagulant, but the Dr. said they will rerun the tests after the 6 months on my zeralto, as there is sometimes a false positive while on the medications. You can consult with a hematologist, PCP, nurse line through your insurance, ER docs, or a pulmonologist. Intensive care had no beds and I was stable enough to be in the step down. I just wonder which “hurts” I should pay attention to in the future. Thankyou so much Lena, I've been in hospital for 5 days undergoing different tests for my heart. Lena Welch (author) from USA on April 22, 2014: PEs can be very difficult to diagnose. However, prompt treatment greatly reduces the risk of death. At this hospital he was under a Vascualar team and Heamotologist. Wish I could afford health insurance. There is no generic for it, so they charge both an arm and a leg. I have small cloths in both lungs and larger clots in my legs. Was told most likely would not make it alive. Today I still have quite a bit of SOB and my oxygen SATs remain between 94 and 96%. Accessed Nov. 16, 2019. Bilateral pulmonary embolism recovery time, for example, is longer than an acute embolism as there are blood clots in each lung. After a pulmonary embolism the body spends a lot of energy on healing the heart and lungs. Pooling of blood tends to … I nearly died. It is a very good idea though to have it checked a lot especially with the antibiotics; they can change gut bacteria and gut bacteria are vitamin K producers. But I still have a persistent cough, and will cough if I try and get a deep breath. Grandparents and other relatives live past 100. We humans are so strong and yet so fragile at the same time. Pulmonary embolism is a blockage in one of the pulmonary arteries in your lungs. I am now having my blood checked every few days and am taking 5 mgs of warfarin every night. Taking measures to prevent blood clots in your legs will help protect you against pulmonary embolism. It is not uncommon for someone to go 3 months without any problems and then find themselves with pain or shortness of breath again. It was a 'Variable Extrathoracic Airflow Obstruction'. Before the ultrasound was finished I knew there was a clot in my leg because the radiologist spent about 5 minutes going over and over one particular area. The blockage can be dangerous. I can't tell I had them physically but mentally it will always be there. Did have echocardiogram yesterday. I understand we all recover differently, and my story may not parallel anyone else. My PE occurred in September 2014 with no warning other than an excruciating leg cramp minutes before I passed out. Life was going on as usual. If your blood oxygen and heart rate look good you will begin to be allowed on supervised walks of the unit. “Recovery from a PE generally takes about one to two years.” Recovery from a PE takes one to two years. I was on there a lot during my recovery period. I've also experienced chest sensations throughout my recovery that I can't find any information on. I met with surgeon (he removed my gullbladder several years ago) and he will remove my lipomas and take a look around my abdominal area via liproscopic surgery. I pushed myself. He will be on Rivaoxoban and will wear compression stockings for life. "For most patients, the recommendation is they go on some form of anticoagulant [blood thinner] for at least three to six months, Shafazand says. I survived but my life has changed. As soon as I told my doctor about my shortness of breath and knee pain, she sent me for an ultrasound of my right leg. Pulmonary embolism (PE) occurs when a blood clot gets lodged in an artery in the lung, blocking blood flow to part of the lung. As others before me, thank you for writing this article. Pete did have an accident when he was 14 when he fell down the side of a train which would explain this. Death can occur even without any warning symptoms. Were the aneurism and warfarin incidents two separate things? If the patient enters under extreme duress, it can be a very scary start to recovery. I made a drive to and from Michigan to get stuff from grampa's house last weekend. Always fatigued and tired. What you need to remember is, the condition which you have recently suffered is potentially fatal. Stayed on warfarin for about 6 months, then they took me off of it. That was my first night. I was nauseous as anything. Breathing exercises and GERD medication helped that to become manageable. Recently I have noticed I can do a lot more like stretch my ribs without any effort or pain, when I cough or take a deep breath it feels easier and clearer than when first diagnosed, exercise is slowly getting a bit easier to do. The pain became so bad for him that he couldn't walk to the kitchen without being out of breath. These need to be treated so you can go back to living! After the clots in my head reabsorbed, I was left with a bruit (whooshing sound in my head). What scares me Ive been back in ER for what they call Sincope. Lying still required a lot of painkillers. Anise oil is often used as a muscle relaxant and anti … My heart rate is under 100bpm. A PE is usually a VTE that travels from the leg to the lungs. He didn't get better only worse over the next few days so we paid another visit to A&E. Self-induced stress will probably knock you off sooner than life in general and even if it doesn't, it will make your stay less enjoyable :-). "Sparks" are like small electrical jolts that are sporadic and move around. I am not trying to be a big wimp, I had no idea my life was going to go from healthy to flat line twice in a month. They think the eye pain might be optic nerve pressed from the massive clot and just gets irritated. However, prompt treatment greatly reduces the risk of death. A pulmonary embolism is a blood clot that occurs in the lungs. Blood clot moving to the lung that causes breathing trouble and risk of death (pulmonary embolism) Your doctor might advise surgical thrombectomy if you have a very large clot. The major complication of anticoagulation is bleeding. Thank you very much for this article. They haven't killed me so I accepted them. It's a 180-degree difference from a year ago when an undiagnosed condition made each step she took a painful proposition. When I entered the ER my doctor had called ahead of time. It's now been 6 months and I've had my baby. I was just diagnosed with this condition about 4 weeks before the PE. Pressure in the lungs is high and breathing can be difficult. This makes it more difficult for your lungs to provide oxygen to the rest of your body. Now I am scared for my life. Ironically, in February and March, my thyroid and one functioning vocal cord went nuts during this time. I am relieved to see the almost in your comment! The only education they seem to have on the matter is what I've shared with them. The first year was tough with lots of false alarm rushing to hospital and extra CT scans I didn't need. They can test you to see if there are any new clots that have shown up. Does anyone have information on what causes sincope after a PE. Blood clots in the lungs can be life-threatening, but the treatment which is prompt using anti-clotting drugs can reduce significantly any risk of death. This may mean an exercise plan, gradual return to work, or medications to help specific symptoms. Lena Welch (author) from USA on December 29, 2013: Thank you! Mine was missed as well. I was scared but went home. Turned out I had multiple embolisms in both lungs. If still there (which I think they are) I am hoping they will be gone after a year or two on thinners. I would love any feedback on chest sensations if anyone else has experienced them. As of now- months later I still can't walk up a trail 50 yards without my o2 dropping. Unfortunately, I have been doing a lot of self blaming when I have a bad evening and feeling I must have overdone it during the day, (at most I have done a slow 3km walk) but I am comforted to know from others here that that is the nature of the beast. I did not even know what PE was, and what it all meant. I have a clot in my leg and 3 in my lungs. Being the now hypochondriac that I am, I went back and reviewed my blood work from my PE admission and discover my WBC has been above normal the whole time. My doctor has said that I will need to be on warfarin for life or until a better drug comes along. Pulmonary embolism is a blockage in one of the pulmonary arteries in your lungs. These have been traced to Vocal Chord Dysfunction and possible Asthma/reactive airway disease. @Baz Your WBC is high, mine is low, maybe that's just the way we are made. I’ve been hospitalized numerous times with blood clots in my lungs. Her articles typically focus on the medical sciences. A link to this page should be included on discharge papers. Thanks for this kind of informative post. I am currently taking xarelto and not quite sure of my next steps. My most recent dx because of the SOB and chest pain has been bronchitis with left side pleuricy. Still trying to get better. I was discharged a few hours later (and walked home slowly because I only live a block from the hospital) once I had been shown how to give myself the heparin injections and familiarise myself with the different colours of Mareva (warfarin) tablets. (I’ve been home 3 weeks). Prior to my knee injury that lead to surgery, I was running 3-4 miles a day. Dec. 5, 2019. http://www.ncbi.nlm.nih.gov/pubmed/25168205. X-ray and CT scan were immediately done and showed presence of blood clots in both lungs. I was only hospitalized for 24 hours because my many clots were small and only in one lung. Other mechanisms of lung damage could also cause death in a few patients but formation of blood clots in the lung is the most consistent problem in … In June 2010, I felt a pain in the right side of my upper chest that I thought at first was just gas pain. Big or multiple blood clots can be fatal. Chest. With no improvement in extreme fatigue, my now fading body, I hope. Thank you again for your wonderful helpful advice - and for being so dedicated to helping others in their journey. https://www.nhlbi.nih.gov/health-topics/pulmonary-hypertension. The best you can do for yourself is to stay in communication with your doctor. Make a donation. Symptoms typically improve within a few days of starting the anticoagulant. Am on Xarelto (for next 6 months) and apart from the feeling of having something sitting on my chest whenever I lie down, I'm otherwise going about my normal routines. 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